Stem Cell Transplant – Day 118

Sarah’s full day in the hospital and mine at home with Millie collided as the stock of nappies dropped to dangerously low levels, requiring a supply mission.

Two packs of Naty into a bag, and a couple of other treats, Millie on her bike and Dad and I jumped on to a couple of Voi scooters for a ride into town, meeting Sarah at the door of Waterfall House for hugs, then we went off to explore the city on two wheels.

A note for drivers in Birmingham; you are among some of the worst I have ever seen in the world. Audis, BMWs and Mercedes’ (always a German-made car) being driven by utter idiots with absolutely no regard for the safety of others. Genuinely, a lot of you deserve to have you cars crushed and yourselves flung into the sea, you utter imbeciles.

And.. breathe….

Millie handled herself brilliantly, showing great awareness on the roads and such a lot of energy. We were caught in a rain shower as we neared home so the last 10-15 minutes was a bit rotten, but we got home and wrapped ourselves up in warm, dry clothes.

Kip’s day was pretty good too; a little bout of gut pain, one bit of sickness but otherwise he’s managed to put on some decent weight again with the updated IV feed. There are two bags going now, plus the beige shake up his nose (am I selling it? anyone?) giving him a 600g gain over two days so he’s up to 15.5kg.

The Epstein-Barr virus he’s been struggling with is reducing but only slowly, so by Monday we might have to talk about commencing the rituximab treatment to clear it out. It’s hard to tell if it’s a necessary step because it comes with complications of its own that might extend the stay in hospital. Like everything at the moment, we just don’t know what’s going to happen.

Kip continues to be loving and funny and excited and chatty and charming to all though.

I couldn’t be more proud of my two.


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